Getting Used to an Insulin Pump

Posts tagged ‘High Blood Sugar’

Toothbrush, Boots and a Memory Man

Boots The Chemist...and whatever else they do these days!

Boots The Chemist…and whatever else they do these days!

When I have a shower in the morning I tend to leave my insulin pump in my dressing gown pocket and then plug myself back in as soon as I’m dry and have something to clip it on to again. You may wonder why I’m telling you this, don’t worry hopefully it’ll become more obvious as the events of today unfold!

I was busy doing some important stuff at work this morning and I’d not bothered making any lunch as I thought I’d have a quick trip away from my computer to Boots in town to grab something. Because it had been busy I hadn’t done a  blood test since breakfast time.

So, one o’clock arrived and I headed out in to the frankly unpleasant weather, swiftly walking the five minutes or so in to try and avoid getting too damp. I got to Boots, picked a “”Delicious” Cheese & Pesto Pasta Salad”, a packet of healthy-ish crisps and a bottle of Diet Coke, then I headed over to the dental bit ’cause I need a new head on my electric toothbrush. I paid up and left heading in to the Victoria Centre to find somewhere to sit and have my lunch.

First thing I did was look at the food I had bought to see how many carb’s I needed to wind up on my pump, I was a little upset to find that Boots have re-branded their “”Delicious” Cheese & Pesto Pasta Salad” so it doesn’t actually tell you what the carbohydrate content is. After searching all over the packet many times I resolved to guess at the contents and adjust after getting back to a computer that I could look it up on (Web-Monkey without his own smartphone – funny I know!).

I did a blood test, as I always do before eating. I was a little surprised to find my BM was at 15.6mmol/l. “Hmm, that’s a little odd” I thought, that new bread must have a lot more carb’s in than it says on the packet. Anyway I wound up the CHO and hit the bolus button to which I was greeted by a “communication error” message. I cancelled out and tried it again and it did the same thing. Then I had one of those moments when you realise what the problem actually is. I patted myself down and realised that the reason I was getting a communication error was because my insulin pump was about two and a half miles away in my dressing gown pocket at home!

I ran back to work, carrying my carbohydrate-camouflaging salad, crisps, drink and toothbrush heads, grabbed my keys from my bag, excused myself and ran to get the bus home.

I got home in a little under fifteen minutes, which isn’t bad going, surprised Deanne who works from home on a Monday, plugged myself in and did a blood test, I’d dropped a little to 15mmol/l, which must have been a mix of the residual insulin and the running to get the bus. Gave Deanne a quick peck on the cheek and ran out the door again.

Getting back to work I looked up the “”Delicious” Cheese & Pesto Pasta Salad”, (56 grams in case you’re interested), wound up the total on my pump and bolused as quickly as I could.

Sadly after being unplugged for about six hours my blood sugar hasn’t yet normalised and I suspect if anything I’ll get a sudden drop at about six o’clock this evening.

When I had sorted myself out to my own satisfaction I posted a message on the Boots UK Facebook page, and to give them their due they actually told me they would look in to a way of including all the details on the back of the packet, you can see my overly sarcastic posting and their responses here if you’re interested.

Anyway, it was a stupid thing to do and closely aligned with last weeks stupidity of bringing my insulin to work ’cause I knew it would run out before the end of the day but forgetting to bring a cartridge in which to put said insulin!

All in all I seem to be having a couple of slow brain weeks, I’m hoping it won’t last much longer!

Ban(ne)d

Tomorrow night I’m trying out with a band, they want a guitarist and I kinda play guitar…badly, or at least I used to about four years ago. Here’s a picture to prove it:

Me, Playing Guitar!

Me, Playing Guitar!

As I say I’m a little out of practice and probably need a few go’s before I can actually play along with their music so I’m hoping they’ll be patient.

Anyway last time I lived the rock ‘n’ roll lifestyle I was using a pen to inject four or five times a day, I didn’t do carb’ counting and I frankly managed my diabetes by crossing my fingers and having a lot of hypos and highs so I’m hoping it’s going to be a bit easier what with all this modern technology I’ve managed to persuade the medical establishment to supply me with.

However What I do have now is of course plugged in to my belly 24/7 and also has a three thousand quid piece of kit hanging off me, this is why I’m going to have to think carefully about my set-up before I head out of the house tomorrow night. I think I’m due an infusion set change tomorrow night so I’ll probably do that before I go, this means I need to pick a spot…and a side of myself that will cause the smallest inconvenience in terms of catching cannula on sticky out bits of guitar or continually rubbing said guitar over infusion set and causing discomfort.

Further to this is of course the fact that I have experienced most things which come up in every day situations since getting the pump, however I haven’t stood up for a couple of hours with a frankly rather heavy guitar (I own one of these now) which weighs about nine pounds, that’s about four kilo’s if you’re a youngster! Also there’s the unpleasantness of hefting guitars, pedals and even worse amplifiers up and down stairs to practice rooms and back to your car afterwards.

So with all these things considered am I having second thoughts about going tomorrow night?

Don’t be silly,  I’ll just do a lot of blood test before, during and after and hope Im lucky enough not to stab a finger so it hurts when I press the strings down, if I do I’ll just have to live with the pain. I’ll just make sure they are all aware that if I play particularly badly it may be a mixture of nerves, not having practised properly for about three years and low blood sugar all combined in to an ear splitting wall of feedback and noise. Or maybe that’s what they want???

Wish me luck 😉

I Opened The Door And…

…Influenza!

Deanne and I have both had the flu (must be proper flu not man flu as she has had it as bad as I have) since Tuesday this week which has meant all the clever stuff I was planning on posting this week (honest) has gone out of the window. Thankfully we’re on the mend…finally, however as my brain still hurts and I need to get myself back in order I thought I’d just post the first scene I wrote for a book I started in 2005 that only ever got up to about three and a bit thousand words before I realised I had more important things to think about at the time, like getting a better job and stuff!

It was going to be a thriller about a diabetic guitarist in a rock band who got framed for the murder of one of his bandmates but I didn’t really have a plan after that, which is probably one of the other reasons it fizzled out! There are a few sweary words in it so please excuse that. Anyway, it’s not much but here you go…


The first thing I notice is that the back of my hand feels warm, and sort of slimy.  I look down.  My vision seems to follow the movement of my eyeballs after a couple of seconds.

It’s my left hand and its red, the hair on my arm is stuck to my skin.  I think the phrase I’d be looking for is ‘caked with sweat’ but currently I don’t seem to be geared up for thinking.

My temples are throbbing, as my brain starts to restart I realise that I’ve had a hypo.  It must have been quite a bad one otherwise there wouldn’t be blood.

The sweat is fairly normal but I must of cut something or there wouldn’t be blood, either on my hand or…bloody hell, on the carpet.  That’s going to be a bugger to clean up when I’ve come round properly.

There is a slightly more immediate problem though.  I’m lying on the floor in my bedroom but none of my limbs seem to be coordinated enough to actually carry me towards the kitchen.

I’m thinking the only reason I’ve come round is because of the adrenalin pumping round my body from whatever injury it is I’ve given myself.

I can reach the drawers from where I’m laying, I manage to turn myself over enough that I can use both my arms and my legs to lever myself into an unsteady upright position.

I’m definitely not stable but thankfully the kitchen is just down the corridor and the corridor isn’t too wide!

I make my way along by propping myself up with my arms on either side of the passageway.  I’m sure I look pretty dumb, but for one thing there’s no one here to see me and for another I wouldn’t care if there was.  In fact I wouldn’t be like this if there was somebody else here!

I meander through to the kitchen.  The adrenalin seems to be doing its job because by the time I get there I can almost stand of my own accord again.

I reach into the fridge while supporting myself with my hand on the bench.  I take the orange juice out with one hand and tip the carton back so it pours in to my mouth.

I never like the feeling of the raw cardboard against my lips.  I should probably cut the container so the top layer of waterproofing doesn’t rip off like that.

I don’t know how much I drink, I finish it though.  ‘Ah crap!’  My first words after hypos tend to be colourful metaphors of the four letter variety.

I put some bread in to the toaster and push the knob down, guess I need to wait until it’s done…


Two possibilities are that you will:

A. Think that is okay!

B. Think it is utter tosh and that you won’t get those few minutes of your life back in which case my work is done as I have been bed bound four out of the five days of this week and will personally definitely not get them back 😛

Have a good weekend.

Up and Down

Up and Down

Up and Down

Having an odd day today – Control wise!

These are my blood test results since midnight:

Time 24hr Blood Glucose in mmol/l
02:30 31.7
05:02 27.0
07:01 23.8
11:32 13.2
13:00 7.8
14:26 2.9
15.11 3.9
16:17 2.9

Let me give you a bit more information…

Deanne and I had a nice meal together last night after we’d put the Young ‘un to bed, it consisted of Pizza, Garlic bread and then a wonderful chocolate Torte all from Waitrose (other supermarket chains are available!) I made some frankly random guesses about the carbohydrates but did do a bit of checking up afterwards and thought I’d massively overestimated. But as it turned out I hadn’t!

I woke up at 2:30 ish needing to go for a wee (sorry too much info.) but I also felt pretty ropey so decided to do a blood test as well, the 31.7 was not what I was expecting, usually my highs only go up in to the 20s even if I’m ill (which I suppose I might actually be).

I didn’t consider that my infusion set may not be working properly because frankly it was half past two in the morning and I wasn’t really thinking straight. So I stayed up and watched some six-s-side and beach volleyball on TV as it was on when I turned on the telly. I did the next blood test at 5 and was a bit shocked to find out I’d only gone down by 4.7 mmol/l. so I did another bolus and went back to bed.

Got up this morning and realised there was probably something up with the infusion set so I changed it (it was due today anyway) and waited to see what happened. Had my lunch at half eleven and was still 13.2 the pump gave me a couple of extra units bolus to get my blood sugar down!

It worked. The rest of this afternoon my blood sugar has been rock bottom and I’ve been eating Jelly Babies like there is no tomorrow.

I don’t feel particularly unwell, although I’ve had such an up and down day that it’s hard to say for certain and what I’ve eaten hasn’t been massively different to normal so I really have no idea what’s caused it.

I’m not asking for sympathy, advice or even acknowledgement from anyone I just thought it might interest those of you who are more newly diagnosed that even after 35…nearly 36 years of doing this I can have a bad day. I’m not trying to depress you all just reminding you and all of those who support and live with you that you can never take Diabetes for granted.

…and on that cheerful note I’ll sign off for now 😛

Here’s Looking at You Diabetics!

Looking Ahead

Looking Forward

Well, new year new me! Actually that’s a lie I’ve not made any kind of resolutions and I don’t intend to change anything in particular, however I am quite excited as to what the next 12 months might hold for myself and all the other Diabetics in the world.

Personally I think the most exciting short term news is the fact that there are some serious jumps being made in CGM, that’s Continuous Glucose Monitoring, technology at the moment, I’m hoping that by the end of this year or not long  after we are going to be seeing the first commercially available CGM enabled Insulin Pumps, that is Pumps with a continuous feedback loop that monitors your BM and adjusts your insulin intake to compensate.

Of course like most scientific developments this could actually take a lot longer than it should and will need proper sign off by whoever the governing bodies are, however it will certainly be a big step, when available, to giving us Type 1s a fairly normal life (minus the obvious infusion set changes and being woken up in the night when your pump battery runs out, etc.)!

Next of course are the ongoing promises of some kind of genetically engineered “cure” for Diabetes, as far as I can make out at the moment the scientists are looking at a number of ways of doing this, for instance putting beta cells in one way membranes which carbs can get through but white blood cells can’t so they pump out insulin without getting destroyed. Another one is fiddling about with your existing biology to regrow the cells in your pancreas that do all the hard work (that they don’t at the moment). This is much further off and I think of all the things happening the First thing I mentioned here the “Artificial Pancreas” is probably most close to fruition and also most exciting for all of us.

The Notts Type 1 Diabetes Group is also steaming on with various members doing various exciting things, the next of which is apparently some kind of video performance thing (sic.) by the committee members prior to the next meeting but I’ll tell you more about that when I’ve had some more details myself. Also just a quick aside, I apologise for not updating the web pages, however it does tend to be a darn sight easier and less disruptive updating Facebook and Twitter so I tend to do those most often and leave the website for if there is anything specific that is worth putting on it!

Personally this year is quite a big one as Deanne and I have a trip to Australia for a month coming up in the not too distant future, the reasons behind this are several-fold but it’s mainly to show the Little-‘Un off to the in-laws, but while I’m there I think I might look in to what’s going on Type 1 Diabetes wise as it is always interesting to get a different perspective on things.

Other than that it’s business as usual, work is busy, life is packed with things to do including childcare, housework, open mic’ nights and attempting to write a novel. Apart from that of course it’s a breeze.

Look after yourselves in 2012, do lots of blood tests, eat well, drink well and most importantly have lots of fun!!!

🙂

Happy (ever so slightly belated) new year!

Christmas is Coming

Oh Dear :-(

I Ate Too Much!

Well it’s less than two weeks until the big day…and when I say “the big day” I mean “the day where you stuff your face until you need a bit of a lie down”! Previously at Xmas I have had problems because as well as having a large meal…at least twice throughout the day…and alcohol…I have also never managed to resist the urge to snack between meals forgetting of course that I am Diabetic and therefore need extra insulin to cope with all the extra pummelling I am giving my poor stomach and digestive system.

However that was before I was on an insulin pump and knew quite so much about carbohydrate counting and how insulin is related to blood sugar and carbohydrate intake. Now I am fully conversed in ratios of insulin to blood sugar and carb’s, also “Mr Pumpy” (I’ve never actually found a decent name for him, still open to suggestions!) does a darned fine job of doing all the complicated calculations for me so all i really need to know now is that I have enough blood test sticks and how much carbohydrate is contained in whatever the next thing I am going to put in my face.

So…does that mean I am going to have a really well controlled seasonal feast this year?

Well, probably not. Getting the guestimates right takes years of practice and it gets a bit hard to remember what you’ve already eaten after the 4th mince pie so “I’m sure just one more won’t hurt” becomes a kind of self fulfilling pronouncement of blood sugar doom!

Unusually I am not heading down to Dorset this year to stay with my Parents, instead they are coming up to visit us so at least I will be in my own house surrounded by food I can easily calculate the carbohydrates of and without too many things that someone has made that I do not have easy access to the recipe for.

I do though feel a lot more confident this year and know that if I do have any wildly turbulent blood sugar episodes that at least after an hour or two I can be back on track and ready for another round of charades.

Tired

Tired Out

Having A Nap

Okay so it’s partly my own fault, the last couple of Sunday’s I’ve been going out (at 9pm) to an open mic’ night with the guy who lives next door to me, this has meant that I’ve got home both times at something close to midnight, which is way past my bedtime! As well as that I’ve had quite a few busy days at work due to colleagues being off and the surprising number of spam e-mails that seem to be circulating at the moment.

In any case I’m feeling a bit run down, of course  that’s not unusual at this time of year, I’m sure we’ve all heard of SAD (Seasonal Affective Disorder in case you haven’t) and of course the nights are drawing in and the temperature has plummeted.

However it’s only really the past year or so that I’ve become more acutely aware of the effect that the temperature and other factors have on my diabetes, and it’s definitely the first time I’ve been connected to a pump when the seasons have changed so dramatically so I’m wondering whether there will be anything different I need to do?!

Should I re-do all my basal rate tests to see if the base rate I am having throughout the day needs changing, or if my bosul needs will go up or down when I eat. I guess like everything else it is just a case of living it and seeing what happens as I do. I guess if I seem to be having a lot of hypos or high blood sugars then I may need to adjust but until that happens I should probably just keep on keeping on!

In Bruges

Choco Story - A Chocolate Museum

Choco Story - A Chocolate Museum

We spent last weekend in Bruges in Belgium, a really nice place with lots of history and architecture and chocolate, all of which were nice!

The holiday got off to a positive start although the young ‘un was a bit unsettled on the trip over. We went by train from Nottingham to St. Pancr(e)as to Brussels and then caught another train to Bruges itself. It was quite a long trip what with all the waiting around for connections, he was really well behaved though.

Things were fine until we got there and got settled in then I did a blood test and it turned out I was 19.6 mmol/l…Oh dear, the next couple were higher at 19.9 then 21.3, in the morning I tested three times between half six and half eight and didn’t get under 10 on any of them. This was when I decided I’d change my insulin, infusion set and cannula, the next test I did two hours later at 10:40 was 3.3 so I’m guessing my suspicion was right and something was up with some aspect of my pump or my insulin.

The next day went pretty well and with most of my results being around 6 then on Monday another good day, I put it down to eating ice cream and chocolates!

Funnily enough the 23rd (Tuesday) was also pretty good but I did have one test out of the ordinary at 17.4 while travelling on the train again, I was worried that the Eurostar was having some kind of negative effect on my pump but my worries were unfounded as the next couple of tests were around 4.

Yesterday was our first full day at home and I came to work, dropping the little ‘un off at nursery, I decided that I would be good and start redoing fasting blood glucose tests so I started at 12 o’ clock and got the following results:

6.9 mmol/l

6.9 mmol/l

6.0 mmol/l

5.3 mmol/l

6.7 mmol/l

7.1 mmol/l

I figure this is close enough to no change for me to leave it alone so I will do my morning tests again next and then something which I have been putting off and off which is night time.

I’m pretty certain I need to do these as I am having more insulin at night than I need for my supper in order to get my BMs about right in the morning, I think this means that at some point at night my blood sugar is going up and therefore I need more insulin, working this out shouldn’t be too hard it just requires that I get up through the night and do blood tests every couple of hours.

Anyway I’m signing off again now, sorry about my lack of communication recently but I’ve been doing some coursework for a thing I’ve been doing at work, however I’ve finished this now and therefore will hopefully get a bit of spare time back in order that I can start putting a few more updates on here again.

A Long Afternoon

A Big Clock

When's Home Time???

This afternoon has been a very slow one to pass, as you can probably tell from the title I’ve given this post, however on the bright side it’s nearly over now!

Part of the reason it has seemed long is ’cause I’m doing some frankly not super-interesting stuff, however the other reason is that I have been quite low twice, a 3.3 mmol/l at 13:35 and a 2.7 mmol/l at 15:16. “Why so low” you ask? To be honest I have no idea, I had my lunch at about 11:30 in the morning (a habit I picked up many years ago when I worked with my Dad) so the one o’ clock test was two hours after lunch and then the three o’ clock one was after a particularly dull meeting.

Because one of the team bought in some gingerbread men I also had one of those after the last couple of Jelly Babies, at 7.8 grams of Carbohydrate it’ll hopefully be enough to keep me going without sending me sky high.

Anyway I thought I should give a quick update on how life is going as I have been a bit busy at work lately and not really had the time to craft my prose on all things Insulin Pump.

It’s been over four months now since I first got plugged in, it has been  a fairly steep learning curve since day one but it is now a part of my normal day to day life and doesn’t really cause me any problems as far as changing  the infusion set or filling up and putting in a new vial of insulin (which I just had to do at my desk at work!).

My control is obviously only as good as my guessing of carbohydrates and for the most part it doesn’t seem to be going too badly, for instance I had a HbA1C test a while back which tells you how your blood sugar average has been over the previous three or so months and it came out at 7.0 mmol/l. This is fantastic and I believe the best result I’ve ever had for one of these.

I’ve also pretty much come to terms with doing exercise while plugged in, at volleyball now I tend to eat about 12 jelly babies (around 60 grams of CHO) over the course of a two hour training session and that seems to keep my blood sugar fairly steady.

I still haven’t got round to doing all my fasting blood glucose tests, partly because I have been lazy but mostly because it is hard to guess when a good date will be for waking up every two hours in the night when you have a hectic lifestyle and a 15 month old baby, however I really must try and do at least one before my appointment to see the consultant in September in order that I can get as near as possible to perfect. I know almost certainly that my blood sugar goes up at some point in the night because when I  wake up in the mornings I tend to be hovering around between about 8 and 14 mmol/l, even if I haven’t eaten anything prior to going to bed with a 5 mmol/l.

Of course whatever happens I am still Diabetic and therefore my control will never be perfect but all that means is that there is always room for improvement and work on my control.

I feel like I’m rambling now so I’ll bid you adieu and write again some time soon when I’ve gathered my thoughts.

One last thing, I recently wrote a short article for the Nottingham’s NCT (the UKs largest charity for parents) Newsletter, I have scanned this in and posted it here if you are interested in reading something totally unrelated to Diabetes that I wrote!

 

In the words of the Cat: “what is it?”

Insulin and Carbohydrate

What Happens to Carbohydrate with Insulin

Okay, I’ve had enough of what I’m meant to be doing at the moment and anywhere to get a drink or something to eat has shut so I thought I’d start on my A-Z of Diabetes, or at least trying to give a bit of background on what it is and what all the things I talk about mean so…

Type 1 Diabetes, also called Diabetes Mellitus is an autoimmune disease, that is it is a problem with your immune system, in my case I believe I got a virus of some sort when I was about 22 months old, my white blood cells killed off the virus but then didn’t know where to stop and decided that my beta cells in my pancreas were also BAD so they started destroying these as well!

Beta cells have a few roles but the most important of these (to a Type 1 Diabetic at least) is that they pump out insulin and (sort of) glucagon. Both of these hormones have an effect on carbohydrates, insulin turns carbohydrates in your blood stream in to energy which your body can then use to power itself, glucagon turns stored energy, e.g. fats, etc. in to energy if you don’t have enough carbohydrate in your blood stream when you need it.

Obviously you need energy to power pretty much anything you do, if you do not have enough then parts of your body can start malfuctioning! This is called “low blood sugar” or a “Hypo”. I have experienced a whole gamut of different types of hypo and personally find they tend to be different dependent on what I’m doing at the time, for instance if I am exercising, not necessarily full on cardio-vascular body pummeling, can be as low impact as walking (or more likely these days pushing a pushchair!) then I will tend to have a muscular hypo, that is some muscle group in my body, possibly all of them, won’t have enough energy and therefore I’ll get wobbly legs or arms or possibly collapse on the floor or else not be able to get out of a chair.

Worse for a number of reasons are hypos that occur when I am thinking hard, e.g. writing a document at work or doing a brain intensive DIY task, in these cases the organ in my body using the most energy is my brain and so when I run out of energy my brain ceases to function properly. The reason this is particularly bad is because my brain, being short of energy, is often unable to realise that it is short of energy and so I miss the signs I would normally pick up and just get lower and lower until (on occasion but not so much these days) I become unconscious, it can also cause bad moods, arguing (more than normal) and a general change in personality. If it is one of these ones the best thing to do is just to tell me it’s a good idea if I do a blood test, I might well argue but if I do too much you can just leave me until I collapse and then call an ambulance 🙂

So, because I am unable to produce my own insulin I need to somehow get insulin inside my body, over the years this has been by syringe and needle, plastic syringe, pen injector and most recently an insulin pump (hooray), all of these devices do pretty much the same thing but to different degrees of control, syringes were okay but you simply sucked up as much insulin as was required by eye and injected it, insulin pens were a bit better as you wound up the dose and it would give you the same dose, standardised, each time you wound it up on the pen so you knew you were getting exactly 10 units if that is what you selected. I’ll come to the pump in a minute!

Of course to control the level of insulin you are giving yourself you also need to find out how much carbohydrate is in your body, originally when I (in fact my Mum and Dad) had to do this you had to catch some urine in a test tube and add some water and a pill which would then change colour to give an indication of how “sugary” I was, e.g. whether I needed to exercise to try and bring my blood sugar down or if I needed to eat something, they were pretty much the only options available back in 1976. Then they bought out dextrostix, which were plastic sticks with a reactive piece of chemistry on the end which, again, changed colour when you wee’d on it, somewhat simpler and less prone to accidents or mistakes in the process. Nowadays I have a blood test monitor, this involves pricking my finger with a lancet to draw some blood, this blood then goes on to a strip, not a world away from the Diastix I used to use but plugged in to a machine which then gives a reading as to your blood sugar, this has a number of advantages!

The old Diastix used to have a number of colours for the different readings, I believe that “blue” meant your blood sugar was between 0 and 9 millimoles per litre (mmol/l the standard unit of measurement until fairly recently) green was between 9 and 12 (or something like that, it was a long time ago!) and then a range up to brown which was frankly much too sugary! Bearing in mind that a normal blood sugar is meant to be between 4 and 8 it obviously didn’t give a lot of fine control over your blood sugar. Also it meant whenever you wanted to test your blood sugar you needed to be able to pee…and find somewhere to pee! Finally because it takes a while for your body to process carbohydrate and eject it the tests were always about an hour or two behind where your body was currently at.

Blood tests are more or less instant, you still have to carry kit about with you but no longer need to find somewhere private to test and the results are to 0.1 mmol/l, in this way my average blood sugar results have come down from somewhere between 9 or 12 to about 7 these days which is obviously desirable and in fact makes me feel much better about myself.

So these days I need to do blood tests to check my blood sugar, guess the amount of carbohydrate in food I am eating and adjust my insulin accordingly (a bit more about insulin types another day).

The pump is a fantastic device, it is programmed with the amount of insulin I need to deal with 10 grams of carbohydrate (CHO) and the amount I need to bring my blood sugar down by 1mmol/l (0.3 units I think) and when my blood test monitor tells the pump what I am eating (which I program in to it) and what my blood sugar is it decides how much insulin to give me for the food and to adjust my blood sugar to the right level and then pumps it in to me! Technology is fantastic.

That’s it for now, gotta go. I’ll continue this another day, feel free to ask questions if you want more info about anything I’m talking about and remember these are my views and opinions and probably wrong on a number of counts!

Not a Barbecue!

I had quite a good weekend. Most of Saturday was spent at a Diabetes UK Networking and Consultation group meeting, which was quite good, they invited Diabetes Groups (Like the NottsType1 Group) to give suggestions on a number of topics around volunteering. We all found it pretty helpful and enjoyed it. Although personally I had a problem guessing the carbohydrates in the buffet they laid on so was quite high by the middle of the afternoon.

A Tasty Salad

A bit like some of what we ate on Sunday.

Sunday was also a good day, in the afternoon our neighbour popped round and asked if we’d like to go to theirs and have some food and alcohol, which we did of course being good neighbours. It meant the Little ‘Un got to play with some other babies for a few hours and we got some fantastic food and a few glasses of wine. Surprisingly I managed to guess the carbohydrates much better for this than for the sandwiches at the event the day before.

Today has been fairly quiet, although busy…if that makes sense, one of my colleagues is away which means I’m doing about twenty five things at once but my blood sugar has been pretty stable. I have recently noticed that I seem to be high in the mornings when I get out of bed so I think I’m going to have to bite the bullet and do some overnight blood tests to see what my BMs are doing overnight. Looking forward to that 😛

In case you haven’t heard I’m tlaking at the Nottingham Type 1 Diabetes Group Meeting tomorrow night about living with Diabetes as well as how I managed to persuade the NHS to give me an insulin pump, if you’re free then head along to:

The YMCA International Community Centre

61B Mansfield Road,

Nottingham,

NG1 3FN

at about 7:30 in the evening to see me talking rubbish for about 20 minutes.

Hopefully see some of you then.

Feeling Better

12 Jelly Babies

12 Jelly Babies

Got to dinner time on Wednesday and was 2.1mmol/l…which is obviously low so it was at that point that I stopped giving myself extra basal insulin and the illness setting!

Thursday went pretty well, admittedly I woke up a bit high in the morning and my next blood test after that but after that I was between 5.8 and 7.6 for the rest of the day, including after volleyball, once again I didn’t try adjusting what I had with dinner I just ate 12 jelly babies over the course of the session and that seemed to do me fine!

I did however use the exercise setting when  got home and had supper, I normally have about 8.2 units for supper, my adjustment dose was -0.1 and the exercise setting removed another 2.4 units of insulin, I did this because I have woken up a few times after volleyball with blood sugar verging on the low side.

So I woke up this morning and did my blood test and I was…

13.7!

Hmmm, back to the drawing board I think.

Stress and Illness

A Virus

A virus, like the Little 'Un and I have had!

The weekend didn’t go exactly as I hoped! The Little ‘Un was acting out of character on Saturday, crying a lot and being off his food where generally he is the happiest baby I know and likes to eat everything you give him. We kept him up late and he kind of slept on Deanne until the end of Dr Who at which point we took his temperature again and the thermometer had changed to amber from green suggesting that his temperature was up.

So Deanne and I took him to QMC, getting there at about 8pm and got him looked at! After a few tests and some questions they said they thought he had a virus and just to keep him dosed up on Calpol and Baby Nurofen and to keep him undressed as much as possible to keep him from getting too warm. We arrived home again after midnight, tired and slightly terrified but frankly happy that it wasn’t anything worse.

We spent most of Sunday relaxing together and making sure he was okay.

My blood sugars through this weren’t too bad but they started going up from when I woke up on Monday. Deanne suggested that it may have been stress but I thought this was a bit odd as usually stress induces low blood sugar for me, I didn’t do anything about it until I had spent most of Tuesday being high as well, at dinner time on Tuesday I told my monitor that I was ill and it gave me an extra 1.3 units of insulin on top of the 6.4 I was getting for dinner and an adjustment dose. This appeared to have the desired affect because when I did a blood test at ten ‘o clock I was 7.8 which is still a bit high but not too bad.

I spent most of last night in bed from about 19:30 as I was just too worn out to cope with being up. I guess this may have been a mixture of actually being ill as well as the stress from Saturday and Sunday on top ot it.

Anyway, this morning I was 18.3 mmol/l so I gave myself another illness setting but then at 10:19 decided that I’d also wind up my basal rate by 10%, which I have kept up ever since and have finally got back to more or less normal again the last three tests I have done getting a 4.6, a 5.4 and a 5.8. I think I will continue along this vein for the rest of the day and hopefully will have fought off whatever the virus is by tomorrow. I’ll let you know how it goes!

Mine’s A Pint

A Pint

Mine's A Pint

What a long weekend that seemed!

Volleyball on Thursday night went okay, I had two Bounty bars (about 33 grams of CHO each) and that seemed to very nicely get me through volleyball, coming out the other side with a BM of 4.9mmol/l, it stayed exactly the same between my post practice blood test at 21:59 and the test I did before I ate at 22:10, which mildly surprised me!

Friday was a bit stressful as I had to mosey over to Clifton to try and sort out some problems people have been having with some new software that I’m helping get installed on peoples’ laptops around the University. I finished work at 16:30 which is admittedly when I should (but rarely wait so long to) finish work on a Friday but usually I jump on a bus straight home whereas this time I had to get to town first.

However Deanne and the Little ‘Un decided they would meet me there and we could have a drink somewhere so we did, which was nice, then we had to go home (which took longer than normal due to some roadworks), feed ourselves, put the boy to bed and then I had to get ready to go out.

Went out with four of the guys from my NCT “having a baby” class, we’ve known each other for about 18 months and occasionally go out on the town together. Suffice to say that I probably drunk more than I should have and woke up the next day feeling a bit ropey, however I failed to write down any of my blood tests for that night so have no idea what my blood sugar did 😛

Saturday morning I was 16mmol/l which is kind of high, however I came to believe that I actually had something wrong with me (e.g a cold rather than a hangover) later that day ’cause I had difficulty bringing my blood sugar down all day long.

Went shopping in the afternoon and the three of us ran around town and then home for a late dinner at which my BM was 18.2mmol/l 😦

Sunday was better, started off a bit high but soon brung it down and spent most of the day within reasonable limits, even though we were doing some gardening, but the garden looks nice now.

Today I’m still sorting out software problems at work so have been back and forth to see various users in various different buildings, however blood sugar seems to be back on usual form with relatively good control most of the day then dropping in the late afternoon so I might do a fasting BM tomorrow afternoon to try and get back on track to sorting out my basal units again after a bit of a break.

My Eyes, My Eyes!!!

Tropicamide

1% Tropicamide

This afternoon I went for my Diabetic Retinopathy screening at Boots in town, therefore if there are any spelling mistakes in this it is down to the fact that I can’t actually read what I’m writing because the 1% tropicamide has taken effect and everything is blurry and bright.

I don’t have a great deal to say following on from the essay I wrote yesterday, what I do need to do is start preparing my talk for the Notts Type 1 group in three weeks time otherwise I’ll just end up jabbering on about whatever comes in to my head and that could be very dangerous for everybody who attends.

Oh yes, there was one thing which was possibly useful that I was told at my EDWARD follow up yesterday, looking through my blood test results it looks like I am invariably high the morning after I have changed my infusion set, it was suggested that other people have had this same problem and the way to overcome it is to leave the previous infusion set in for a couple of hours after swapping over…

I can’t really see how this works because there is nothing (e.g. no pump) pushing the remaining insulin from the infusion set in to you but being an open minded sort of chap I’ll give it a go and see if I get better post change results.

My next change is on Thursday night which is volleyball night anyway so not sure if that’ll give me a sensible post change result but I’ll try and remember to keep my eye on my post change results the next few times I do it and update you on whether it’s helped.

Busy

Busy

Busy, Busy, Busy!

In case you were wondering I’m kind of busy at work at the moment which is why I’ve been a bit quiet, blog-wise! Thankfully I’ve managed to steal a few minutes this afternoon to post an update.

I think the last time I wrote anything I was still having high blood sugars first thing in the morning and was wondering if it was something to do with my extended time off work. Well it looks like it was because I am now back to where I should be with my morning BMs, which is good.

I had a strange night last Thursday at volleyball because didn’t drop my basal rate I just had about three lots of 20 grams of carbohydrates and was fine throughout the practice and the night afterwards. Think I might try this again this week, although the season and practices are nearly over so I will then need to remember this stuff until we start back again in a couple of months.

Went to my EDWARD 12 month follow up course today, I’m quite pleased because my HbA1C test came back at 7.0mmol/l which is frankly better than it’s ever been, Admittedly my previous results were 7.8, 7.6 and 7.8 again but the main reason for that was the number of hypos I used to have, pretty sure it’s gone down or at the very least they aren’t as severe as they used to be as I seem to get warning signs in the high 3s now rather than under 3.

I built and installed a raised bed in the garden yesterday, excitement central at the Ladle house, but the reason I mention it is because I didn’t have a hypo even though it was quite good body and brain exercise. There was however a fair bit of swearing, even though I have vowed to stop, the only times I seem to swear now is while doing DIY or volleyball, personally I think that’s excusable.

Last (but obviously not least!!!) for anyone interested I will be doing a talk at the next Nottingham Type 1 Diabetes Group meeting on Tuesday the 7th of June at 19:30 at the YMCA on Mansfield Road. I have entitled the talk “A rambling session from Dan about his life with Diabetes and obtaining and operating an insulin pump“. I think that may perhaps be overkill in terms of wordcount for the title of a talk but I asked Alex and she didn’t disagree so that’s what it is. I will be talking about my life up to now with Diabetes along with information on how I managed to persuade the NHS to give me an insulin pump and how my life has been since getting it. Feel free to come along if you are interested.

That’s it for now, back when I get some more spare time!

That’s a Bit Random

Blood Test Sticks

Blood Test Sticks

Still seem to be dropping in the afternoons, got home yesterday after picking the Little ‘Un up from nursery and was 2.5mmol/l after making tea. This was after a test a couple of hours before which was 3.5mmol/l when the pump did a -0.8 units on my dose to try and get me back to where I should have been. Guessing I need to get fasting again!!!

Had a slightly better BM this morning, still a bit high but did a test a couple of hours after breakfast and it had gone up to 17.0mmol/l which was a bit of a shock. Not sure if my body is still trying to throw off the trauma of two weeks of getting up late and eating whatever I wanted?

Sadly forgot to pack a new box of blood test sticks in my bag so my last test was when I had my lunch at 11am this morning, so I had a couple of chocolates from a box on one of my colleagues’ desks to try and make sure I don’t drop before I get home so it’ll be interesting to see what my blood sugar is when I get home and get the chance to do a test.

Down and Up

Up and Down

Up and Down

Don’t have much time to write today as I’ve been fairly busy with other bits and pieces…

Well the night time/morning results seem to be coming back to nearer where they should be at least! had a slightly earlier supper last night at 20:53 then actually managed to get out of bed before I went to sleep and was 4.1mmol/l at 23:18!

Then got up this morning and was 12.8mmol/l at 06:35. This is an improvement and just goes to show that holidays obviously have a bigger effect on control than I previously realised.

Am going to try and be a bit more of a fascist about my carbohydrate counting over the next few days just because I’m hoping that it might sort out the ups and downs I’ve been having since I got back from Dorset.

Baby, I’m Back!

Baby, I'm Back!

Baby, I'm Back!

Well, back to Nottingham, home and work. I apologise for not posting once while I was away but frankly I was too busy not going near any computers to worry about it.

My time away from work started fairly quietly with a bit of DIY in the first week, the best part of which is that it’s pretty much all finished so I can finally relax a bit, my blood sugars were okay and for the most part I had quite a successful week, also spent some time with my boy and my wife which was nice.

Then on the Friday (thanks Dee!) we set off for Dorset and my Parents house, the drive down was pretty good and fairly quiet because there was some kind of wedding going on at the same time, it was a nice drive, the rest of Friday was spent preparing for the Little ‘Un’s party on Saturday, blowing up balloons and helping Deanne make lovely food for the next day.

Saturday came and with it my entire family (more or less) that is Mike, Lilian, Paul, Kim, Marc, Linda, Ben, Richard, Ana, Rachel, Mark, Marcel, Deanne, Joshua, Daniel (e.g. me!) Everyone either a blood or marital relation or as near as is possible without an infusion.

It was a really nice sunny day and we ate lots of food, drank quite a lot of wine and sparkling rosé and played Boules in the back garden, a good time was had by all and it went better than I could have hoped for.

After everyone had gone home and we had cleared up we got ready for our trip to Cornwall. My parents and us stayed in one of these cabins which was fantastic, visited the Eden Project and the Lost Gardens of Heligan which were both pretty spectacular. My control was a bit up and down, I’m sure you’ll know what that’s like as I can’t be the only one that has issues on holiday when eating unusual food at strange times.

However the worst thing was that I had a catastrophic failure of my infusion set…probably my own fault…but a pain non-the-less.

The chalet we were staying in had a hot tub, which was nice, but I changed my infusion set pretty much on the first evening we arrived. Everything seemed okay but on the last day I should have had it in my blood sugars started rising, I just thought I’d been eating too much so ignored it but then at supper time I wound up the correct dose, hit the confirm button and as the insulin started going in to me it started coming out of the bottom of the sticky plaster that holds the pump on to me.

The reason I mentioned the hot tub is that I believe what happened was that the hot water in the tub affected the sticky plaster over the three or four times I went in it while using the same infusion set/cannulla and therefore it had come loose and come off me enough for the insulin to leak out.

What this actually meant was that I didn’t get my full dose of insulin and at the same time had absolutely no idea how much insulin I had received! Suffice to say the next day my BG was a little high in the morning.

What I should probably have done is waited up a couple of hours and done another blood test to see how I was but it had been a tiring and difficult few days and we had to leave early in the morning so I did not!

Anyway now I’m home I’m hoping that my BGs are going to get back to normal and stop being quite so up (mainly) and down.

Holiday Time, Sort Of!

An Umbrella

Not that Kind of Holiday Sadly 😦

After today the updates may be a bit intermittent for the next couple of weeks as I am not at work for a bit. However I’ll do my best to keep updating every now and again until normal service is resumed.

My blood tests yesterday afternoon did not finish as I expected staying pretty much where they started for the rest of the tests, even going up a bit towards 6pm. I believe the reason for this is because once again I’m not entirely well, I have a sore throat, a cough and am apparently snoring like a herd of Aberdeen Angus (sorry Dee)! What with this and my annual leave I’m going to leave the fasting blood tests until after I’m back at work again.

I also badly misjudged the amount of mashed potato I had served myself at dinner time last night and ended up with a blood sugar around 18mmol/l which just goes to show that you’re much better to check if you’re not sure, which I wasn’t!

My time off work is going to be spent doing a variety of things including trips to Dorset and Cornwall, another (final) birthday party for the Little ‘Un and a host of DIY tasks at home so it should be a good test of my pump management skills.

The party should be good as all three of my brothers are making it, even the one who lives in Brazil, so it’s a nice way to celebrate my son’s first birthday, even if it is nearly a month after his actual birthday. There will be cake and chocolate and all manner of interesting foods.

Talking of tasty food I don’t think I’ve mentioned it before but Deanne is from Australia and with it being ANZAC day we should be having ANZAC biscuits on Monday (the 25th of April) so I need to figure out how much carbohydrate they have in them, not such an onerous task really 😉

Volleyball tonight should be okay, I’m feeling a little more confident about how to not have hypos and not get too high while playing now but I shouldn’t get too complacent because that is always when things go wrong.

I’ve also got the Nottingham Type 1 Diabetes Group website fixed and have updated that, including details of the talk I will be doing on the 7th of June on how I went about getting hold of my insulin pump and then how I’ve been dealing with adjusting to having it so be sure to check that out and keep the date clear in your diary.

So for the time being I’ll sign off and until I’m next on-line I’ll bid you farewell and have a nice bank holiday.

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