Getting Used to an Insulin Pump

Posts tagged ‘Dan Ladle’

Up and Down

Up and Down

Up and Down

Having an odd day today – Control wise!

These are my blood test results since midnight:

Time 24hr Blood Glucose in mmol/l
02:30 31.7
05:02 27.0
07:01 23.8
11:32 13.2
13:00 7.8
14:26 2.9
15.11 3.9
16:17 2.9

Let me give you a bit more information…

Deanne and I had a nice meal together last night after we’d put the Young ‘un to bed, it consisted of Pizza, Garlic bread and then a wonderful chocolate Torte all from Waitrose (other supermarket chains are available!) I made some frankly random guesses about the carbohydrates but did do a bit of checking up afterwards and thought I’d massively overestimated. But as it turned out I hadn’t!

I woke up at 2:30 ish needing to go for a wee (sorry too much info.) but I also felt pretty ropey so decided to do a blood test as well, the 31.7 was not what I was expecting, usually my highs only go up in to the 20s even if I’m ill (which I suppose I might actually be).

I didn’t consider that my infusion set may not be working properly because frankly it was half past two in the morning and I wasn’t really thinking straight. So I stayed up and watched some six-s-side and beach volleyball on TV as it was on when I turned on the telly. I did the next blood test at 5 and was a bit shocked to find out I’d only gone down by 4.7 mmol/l. so I did another bolus and went back to bed.

Got up this morning and realised there was probably something up with the infusion set so I changed it (it was due today anyway) and waited to see what happened. Had my lunch at half eleven and was still 13.2 the pump gave me a couple of extra units bolus to get my blood sugar down!

It worked. The rest of this afternoon my blood sugar has been rock bottom and I’ve been eating Jelly Babies like there is no tomorrow.

I don’t feel particularly unwell, although I’ve had such an up and down day that it’s hard to say for certain and what I’ve eaten hasn’t been massively different to normal so I really have no idea what’s caused it.

I’m not asking for sympathy, advice or even acknowledgement from anyone I just thought it might interest those of you who are more newly diagnosed that even after 35…nearly 36 years of doing this I can have a bad day. I’m not trying to depress you all just reminding you and all of those who support and live with you that you can never take Diabetes for granted.

…and on that cheerful note I’ll sign off for now 😛

Here’s Looking at You Diabetics!

Looking Ahead

Looking Forward

Well, new year new me! Actually that’s a lie I’ve not made any kind of resolutions and I don’t intend to change anything in particular, however I am quite excited as to what the next 12 months might hold for myself and all the other Diabetics in the world.

Personally I think the most exciting short term news is the fact that there are some serious jumps being made in CGM, that’s Continuous Glucose Monitoring, technology at the moment, I’m hoping that by the end of this year or not long  after we are going to be seeing the first commercially available CGM enabled Insulin Pumps, that is Pumps with a continuous feedback loop that monitors your BM and adjusts your insulin intake to compensate.

Of course like most scientific developments this could actually take a lot longer than it should and will need proper sign off by whoever the governing bodies are, however it will certainly be a big step, when available, to giving us Type 1s a fairly normal life (minus the obvious infusion set changes and being woken up in the night when your pump battery runs out, etc.)!

Next of course are the ongoing promises of some kind of genetically engineered “cure” for Diabetes, as far as I can make out at the moment the scientists are looking at a number of ways of doing this, for instance putting beta cells in one way membranes which carbs can get through but white blood cells can’t so they pump out insulin without getting destroyed. Another one is fiddling about with your existing biology to regrow the cells in your pancreas that do all the hard work (that they don’t at the moment). This is much further off and I think of all the things happening the First thing I mentioned here the “Artificial Pancreas” is probably most close to fruition and also most exciting for all of us.

The Notts Type 1 Diabetes Group is also steaming on with various members doing various exciting things, the next of which is apparently some kind of video performance thing (sic.) by the committee members prior to the next meeting but I’ll tell you more about that when I’ve had some more details myself. Also just a quick aside, I apologise for not updating the web pages, however it does tend to be a darn sight easier and less disruptive updating Facebook and Twitter so I tend to do those most often and leave the website for if there is anything specific that is worth putting on it!

Personally this year is quite a big one as Deanne and I have a trip to Australia for a month coming up in the not too distant future, the reasons behind this are several-fold but it’s mainly to show the Little-‘Un off to the in-laws, but while I’m there I think I might look in to what’s going on Type 1 Diabetes wise as it is always interesting to get a different perspective on things.

Other than that it’s business as usual, work is busy, life is packed with things to do including childcare, housework, open mic’ nights and attempting to write a novel. Apart from that of course it’s a breeze.

Look after yourselves in 2012, do lots of blood tests, eat well, drink well and most importantly have lots of fun!!!

🙂

Happy (ever so slightly belated) new year!

Christmas is Coming

Oh Dear :-(

I Ate Too Much!

Well it’s less than two weeks until the big day…and when I say “the big day” I mean “the day where you stuff your face until you need a bit of a lie down”! Previously at Xmas I have had problems because as well as having a large meal…at least twice throughout the day…and alcohol…I have also never managed to resist the urge to snack between meals forgetting of course that I am Diabetic and therefore need extra insulin to cope with all the extra pummelling I am giving my poor stomach and digestive system.

However that was before I was on an insulin pump and knew quite so much about carbohydrate counting and how insulin is related to blood sugar and carbohydrate intake. Now I am fully conversed in ratios of insulin to blood sugar and carb’s, also “Mr Pumpy” (I’ve never actually found a decent name for him, still open to suggestions!) does a darned fine job of doing all the complicated calculations for me so all i really need to know now is that I have enough blood test sticks and how much carbohydrate is contained in whatever the next thing I am going to put in my face.

So…does that mean I am going to have a really well controlled seasonal feast this year?

Well, probably not. Getting the guestimates right takes years of practice and it gets a bit hard to remember what you’ve already eaten after the 4th mince pie so “I’m sure just one more won’t hurt” becomes a kind of self fulfilling pronouncement of blood sugar doom!

Unusually I am not heading down to Dorset this year to stay with my Parents, instead they are coming up to visit us so at least I will be in my own house surrounded by food I can easily calculate the carbohydrates of and without too many things that someone has made that I do not have easy access to the recipe for.

I do though feel a lot more confident this year and know that if I do have any wildly turbulent blood sugar episodes that at least after an hour or two I can be back on track and ready for another round of charades.

Unidentified Flying Illness

Unidentified Flying Bacteria

Unidentified Flying Bacteria

I’m Ill!

Okay that may seem like stating the bleeding obvious, however I’m not talking about my Diabetes, this is something new and frankly not super-comfortable. Let me tell you about it.

A couple of weeks ago we visited my parents in Dorset for the weekend, everything was fine until Saturday Morning when I started feeling a bit odd. Then at about ten or eleven in the morning I ran to the toilet and was ill. I continued to feel unwell for the rest of the weekend.

After getting home I forgot about it until the next weekend when I got a kind of pain under my ribs which lasted a good chunk of Saturday. We went to our neighbours’ house in the evening and frankly got a bit drunk, which was quite good fun, then on Sunday I didn’t feel great, which I put down to the alcohol I’d consumed, however I had a volleyball game on so I thought “self-inflicted, just put up with it” and played anyway (even with my ill-health and at-the-time-unrealised underlying health condition we won three sets to none – I actually played pretty well!!!).

Anyway, it got to Tuesday and as the day went on the pain under my ribs came back and I was having pains every time I took a deep breath in, coughed, sneezed or laughed…funny! I got myself to the NHS walk-in centre in town and got seen by a Nurse. Deanne had suggested it was Pleurisy but he discounted that because when he listened to my lungs they didn’t rattle, probably a good thing really.

After a bit of consultation he decided that it was possibly pancreatitis, caused by my recent-ish change in regime on to an insulin pump, he said this may have upset my pancreas due to the difference in my blood sugars and general control from being a bit random and bad to being quite well controlled.

This actually seemed to make a lot of sense to me but he said it was sensible if I went and saw my GP anyway so he booked me an appointment in the afternoon. I went and saw the GP and after a bunch of questions she decided that she wasn’t sure exactly what it was but that it may have something to do with my diaphragm and lungs or else something completely different so she gave me some pills called “lansoprazole” which seem to calm the acid in your stomach down so it doesn’t upset your other organs but sent me to the blood-letters at city hospital in the morning for a blood test just to discount the pancreatitis.

So currently I have no idea what’s wrong with me but still have pain and no idea when I’m likely to hear about my results.

Great!

Tired

Tired Out

Having A Nap

Okay so it’s partly my own fault, the last couple of Sunday’s I’ve been going out (at 9pm) to an open mic’ night with the guy who lives next door to me, this has meant that I’ve got home both times at something close to midnight, which is way past my bedtime! As well as that I’ve had quite a few busy days at work due to colleagues being off and the surprising number of spam e-mails that seem to be circulating at the moment.

In any case I’m feeling a bit run down, of course  that’s not unusual at this time of year, I’m sure we’ve all heard of SAD (Seasonal Affective Disorder in case you haven’t) and of course the nights are drawing in and the temperature has plummeted.

However it’s only really the past year or so that I’ve become more acutely aware of the effect that the temperature and other factors have on my diabetes, and it’s definitely the first time I’ve been connected to a pump when the seasons have changed so dramatically so I’m wondering whether there will be anything different I need to do?!

Should I re-do all my basal rate tests to see if the base rate I am having throughout the day needs changing, or if my bosul needs will go up or down when I eat. I guess like everything else it is just a case of living it and seeing what happens as I do. I guess if I seem to be having a lot of hypos or high blood sugars then I may need to adjust but until that happens I should probably just keep on keeping on!

HbA1C

If you are Diabetic then you’ll probably know what an HbA1C test is, if not then I’ll tell you now.

Haemoglobin

Haemoglobin

HbA1C is a test which looks at the amount of Glycated Haemoglobin in your blood and returns a result which gives you an average blood sugar reading over a number of months.

As far as I have been able to figure out the way it works is that when your body creates red blood cells they contain the amount of carbohydrate that your body has in it at the moment they were formed. Because red blood cells have a lifespan of around three months it means that a sample of your red blood cells will always tell you what the average reading has been over the last three months or so!

For a Diabetic this is obviously important, the closer we can get to normal (between four and eight) the better our long term prospects will be, health wise!

Anyway I went to have a blood test a couple of weeks back in order that my results would be ready in time for my doctors appointment on Monday of this week. I went along quite excited but unsure of what to expect because it is the first blood test I’ve had since really understanding how the Insulin Pump works and how best to use it. It was my first visit to the consultant since getting the pump so that was also a bit nerve racking.

It was quite a good meeting, I asked a few questions and we discussed how it’s been going and then she let me know what my result was.

6.9mmol/l

I was amazed, this is the lowest I’ve ever had so obviously something is working 🙂

Advance Australia Fair

Diabetes Australia

Diabetes Australia

We’ve recently booked our tickets to go to Australia next year, the main reason for this being that Deanne is from Australia and all her family (and by extension my in-laws) live there, in Perth to be precise. Therefore the only ones who have met the Little ‘Un face to face are his Nana and Aunty Donna who came over last year just after he was born. So we’re going to go visit and show our boy off to all his relations. “Sounds nice” I hear you think (didn’t I mention I’m telepathic?!?!?) but with a trip to Australia come a number of  Diabetes related challenges:

1. Time zone

2. Heat

3. Food

4. Routine

5. Supplies

I have been over there before but never with an insulin pump so I’m going to have to relearn some of my coping mechanisms. For point 1. I think it shouldn’t be too much of a problem, rather than a big bang I think I’ll do a phased time change altering the time on my pump by two or three hours starting the day we leave. The time difference is around eight hours so it’ll take a few days to normalise but the jet lag usually takes that long to get over so this might even help that process…

UPDATE… I had my checkup at the hospital and my consultant suggested that it would be simplest to set my basal rate back to the original setting of half a unit an hour and see how I get on, can change it to the right time zone after a few days when my body has caught up or leave it if it seems to be working then!…END OF UPDATE

For 2. it’ll be autumn over there when we go and so the temperatures should be between 30° and 24°, which is obviously a darned site hotter than it is over here, even in the middle of summer! ThereforeI’ll have to keep a close eye on my control and possibly drop my basal and meal rates depending on how I go.

3 is only really a problem if I do what I have done in the past and snack between meals, however I seem a lot less inclined to do that now I’m on an insulin pump as I know the slightest amount of carbohydrate can send me sky high, so I’m guessing I shouldn’t have too much of a problem as I just give myself more insulin if I’m eating more food.

The difficult one of course is number 4. While I may not do the same things every day I do generally have a fairly standard list of things that I do, both inside and outside work, being on holiday is more like a weekend, only for a whole month or so. I guess we’ll have a routine of sorts as with a 2 year old child you can’t really help it but even so it’s not the same as being at home.

Finally I have to do some forward planning which, frankly, I’m a bit rubbish at. For number 5 I have to make sure I have plenty of infusion sets + cannulas, insulin, blood test sticks and lancets, batteries for the pump, batteries for the monitor and to be honest probably loads of other things I’ve forgotten about at the moment. This means I need to contact and probably have an appointment with my GPs surgery in order that they will allow me to order, e.g. twice the number of things to normal, as well as ordering new stuff from Accu-Chek in enough time to actually have them arrive (when no one is in the house as per normal) then have enough chance to go to the post office collection depot to pick the stuff up which was delivered while there was no one at home because we both work…as I would imagine is the case for most people. “Not too much of a problem” you think (see I’m doing it again) but did I mention that I’m not a good organiser and only tend to remember these sort of things at the last minute.

On the bright side I’ve added an appointment to my calendar at work which will keep reminding me so hopefully that’ll be enough to actually get me to remember to make a call to Accu-Chek and an appointment with the doctors!

Anyway, aside for all that and any worries I might have about travelling with a two year old and adjusting my regime for foreign climes I’m actually pretty excited really, the other two times I’ve visited Perth have been brilliant, admittedly one was to get married and the other was to attend a wedding so you’d expect it to be relatively cheerful, but even so I feel a lot more confident about my Diabetes these days and hope that it isn’t a misplaced sense of confidence!

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